In 2007 the European MS Platform organized a conference to launch the MSID project. The main objectives of this project, supported by the European Commission, were and still are: the analysis and comparison of MS data collection systems in Europe with the aim of developing and piloting a European Register on MS, and the activation of the European Code of Good Practice on the quality of life for MS patients.
At the Consensus Meeting in May, the results of the research done in the framework of developing a European Register on MS will be presented, both from a medical and a statistical perspective. In the afternoon sessions there will be specific attention for the Code of Good Practice in MS and its role to raise the standards through Europe, the MS Barometer – EMSP’s tool for making effective policy -, and for the added value of the MS-ID project in the context of the EU Public Health programme.
The MS-ID project findings which will be presented at the Consensus Meeting and its outcome should contribute to an increased awareness across the EU on MS at political level, to a better understanding of the major inequalities of MS treatment and care across the European Union, as well as to the utilization of high quality comparable data on MS to positively impact the health policy in Europe so that citizens affected by MS can participate as full and equal citizens in society today. A draft program and practical details on the Consensus Meeting in Brussels is available on http://www.ms–in-europe.org/news
Multiple Sclerosis (MS) is a complex, chronic, disabling disease. It affects twice as many women as men, and is usually first diagnosed between the ages of 20 and 40, at a critical stage in adult life with often considerable family and work responsibilities. To date, no cure exists. There are currently over 500,000 people diagnosed with MS in Europe. EMSP represents their interests at the European level, working with more than 30 national associations to achieve its goals of high quality equitable treatment and support for Europeans with MS.