New Research Calls For Guidance To Monitor Health Of Adults With Down’s Syndrome

Primary care surveillance of children and adults with Down’s syndrome is essential to improve health and prevent complications, says a study (1) in the British Journal of General Practice (BJGP).

Adults with Down’s syndrome are predisposed to a variety of medical conditions but nearly half the patients surveyed (2) in the north of England had not seen a doctor in the previous 12 months and 33% had not had a medical assessment in the previous three years.

Common medical problems faced by adults with Down’s syndrome include congenital heart disease, hypothyroidism, depression, and ophthalmic disorders.

Commenting on the study, lead author, Dr Alex Henderson from the International Centre for Life, Newcastle upon Tyne, said:

“This study suggests that there are potential benefits of structured health checks for adults with Down’s syndrome.”

Another study in this month’s BJGP, conducted in the Netherlands, looked at the health problems and prescription rates of people with intellectual disabilities (3).  It found that this group of people paid 1.7 times more visits to the GP than those without intellectual disabilities.

Dr Lantman, from Maastricht University, who led the study said:
“This is the first study providing evidence on the higher consultation and prescription rates in people with intellectual disabilities.  We would recommend that further development of training in the health problems of people with intellectual disabilities is needed.”

1. Henderson A, Lynch SA, Wilkinson S, Hunter M. Adults with Down’s syndrome: the prevalence of complications and health care in the community. Br J General Pract 2006; 57: 50-55
2. The authors reviewed the notes of 64 adults in the Newcastle and Gateshead area.
3. Straetmans JMJAA, van Schrojenstein Lantman-de Valk HMJ, Schellevis FG, Dinant GJ. Health problems of people with intellectual disabilities: the impact for general practice. Br J Gen Pract 2006; 57:64-66
4. The January 2007 edition of the BJGP is now available.  Please contact the RCGP Press Office for any additional papers.

The Royal College of General Practitioners (RCGP) is the largest membership organisation in the United Kingdom solely for GPs. It aims to encourage and maintain the highest standards of general medical practice and to act as the “voice” of GPs on issues concerned with education, training, research, and clinical standards. Founded in 1952, the RCGP has over 25,000 members who are committed to improving patient care, developing their own skills and promoting general practice as a discipline. http://www.rcgp.org.uk

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